组织工程与重建外科杂志

组织工程与重建外科杂志 ›› 2024, Vol. 20 ›› Issue (2): 160-.

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先天性多发性关节挛缩症康复专家共识

  

  • 出版日期:2024-04-30 发布日期:2024-05-14

Expert consensus on rehabilitation of arthrogryposis multiplex congenita

  • Online:2024-04-30 Published:2024-05-14

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摘要：

　先天性多发性关节挛缩症（Arthrogryposis multiplex congenita，AMC）是累及身体多个部位挛缩和畸形的疾病，
致残率高，严重影响患者的日常生活。本共识以循证医学证据为依据，经全国肢体畸形专家组反复研讨，结合近年来国
内外研究成果，基于渐进式精准康复理念，为 AMC 患者制定个性化康复策略，规范康复流程，制定全周期康复管理标
准，有效提高患者康复疗效。本共识主要包括康复目标、康复团队组成与职责、康复治疗方法、康复工程技术以及定期
随访，可供临床医师、康复医师、康复治疗师、康复工程师、护师等在工作中参考及应用。

关键词:

Abstract:

Arthrogryposis multiplex congenita is a disease that affects multiple parts of the body， causing contracture and
deformity. It has a high disability rate and severely affects the daily life of patients. This consensus is based on evidence
based medicine and has been repeatedly discussed by a national expert group on limb deformities. In combination with recent
domestic and foreign research results， personalized rehabilitation strategies have been developed for AMC patients based on
the progressive precision rehabilitation concept， standardizing the rehabilitation process and formulating comprehensive
rehabilitation management standards， effectively improving the rehabilitation effectiveness of patients. This consensus mainly
includes rehabilitation goals， composition and responsibilities of the rehabilitation team， rehabilitation treatment methods，
rehabilitation engineering technology， and regular follow-up， which can be used as a reference and application for clinical
physicians， rehabilitation physicians， rehabilitation therapists， rehabilitation engineers， nurse practitioners， etc. for
reference and application in their work.

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