组织工程与重建外科杂志 ›› 2024, Vol. 20 ›› Issue (3): 335-.

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头颈部葡萄酒色斑患者的病耻感现状及其影响因素

  

  • 出版日期:2024-06-01 发布日期:2024-07-05

Status and influencing factors of stigma in patients with port wine stains in the head and neck

  • Online:2024-06-01 Published:2024-07-05

摘要:

 目的 探讨头面部葡萄酒色斑(Port-wine stains,PWS)患者病耻感现状及其影响因素。方法采用便利抽样的方法,于2022年8月至2022年12月期间,抽取113例头颈部PWS患者为研究对象,通过一般人口学资料调查表、慢性疾病病耻感量表(SSCI)、社会影响量表(SIS)、自尊量表(SES)进行问卷调查。结果 PWS患者SSCI得分为50.61±22.2、SIS得分为 48.71±15.17,单因素方差分析显示,影响病耻感的因素有文化程度、月收入、治疗次数、PWS部位、PWS面积(P<0.05);PWS患者自尊水平条目得分为24.75±4.92,单因素方差分析显示,影响自尊水平的因素有月收入、是否工作(P<0.05)。SSCI得分、SIS得分均与SES得分呈显著负相关(P<0.01)。结论 PWS患者病耻感处于中等水平,患者自尊水平较低。慢性疾病病耻感、社会影响病耻感均与自尊水平呈显著负相关,医护人员在治疗时应适当疏导患者,引导其积极面对疾病,并呼吁公众对慢性皮肤病患者多一些理解与关心。

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Abstract:

Objective To explore the current status and influencing factors of stigma in patients with port wine stains
(PWS) in the head and neck. Methods Using the convenient sampling method,113 patients with PWS in the head and
neck from August 2022 to December 2022 were recruited. The general demographic data questionnaire, stigma scale for
chronic illness (SSCI), social impact scale (SIS) and self-esteem scale (SES) were used to conduct a questionnaire survey.
Results The SSCI score of patients with PWS was 50.61±22.2, and the SIS score was 48.71±15.17. Single-factor analysis of
variance showed that the influencing factors of stigma were education level, monthly income, treatment times, lesion
location, and lesion size (P<0.05); The SES score of patients with PWS was 24.75±4.92, and single-factor analysis of
variance showed that the influencing factors of self-esteem were monthly income and job absence (P<0.05).SSCI scores andSIS scores were negatively correlated with SES scores (P<0.01).Conclusion Patients with PWS had a moderate level of
stigma and a low level of self-esteem. Both chronic illness stigma and social impact stigma are significantly negatively
correlated with the level of self-esteem. Medical staff should provide appropriate guidance to patients during treatment,
enhancing patients’ confidence and guiding patients to face the disease positively, and meanwhile, call on the public to give
more concern to patients with chronic skin diseases.

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