Abstract:

The diagnosis and treatment of rare neurological diseases are challenging and impose heavy burdens on patients, thus providing an important opportunity for medical humanities education. This paper explores strategies and methods for integrating medical humanistic spirit into the teaching of rare neurological diseases, aiming to cultivate medical students’ empathy and social responsibility through patient narratives, interdisciplinary collaboration, and ethical practices, thereby promoting patient-centered medical care. The teaching emphasizes the principle of “patient value first”, and guide students to understand the individual dilemmas behind diseases through real clinical cases and health policy analysis, deepen their appreciation for life dignity, and inspire motivation to commit to scientific research and innovation. By integrating humanities and professional expertise, we can enhance the compassion and depth of medical education, providing support for the development of a more compassionate rare disease healthcare system.

Key words: Rare neurological diseases, Medical humanities, Humanistic care, Multiple sclerosis, Neuromyelitis optica